The MS Trust podcast
Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.
Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.
Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.
Listen now for helpful information on symptoms, treatments, updates and a whole lot more.
Episodes
96 episodes
ECTRIMS Patient Community Day: why researchers need people with MS to get involved
In this episode we explore the biggest breakthroughs from ECTRIMS 2025, the world’s largest MS research conference. We look into new treatment insights, the push for inclusive research, and how people with MS can shape the future of care.
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1:09:42
What does the MS hug feel like? Banding tightness, rib cramps, stitch sensations, girdling pains, and how to deal with it
In this episode of the MS Trust Podcast, we explore the MS Hug—one of the most confusing and uncomfortable symptoms of multiple sclerosis. From tight banding and rib cramps to stitch-like pain and breathlessness, we unpack what it feels like, w...
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40:24
Why can’t I sleep? Night-time MS symptoms uncovered
If you live with multiple sclerosis and struggle to get a good night sleep, this episode is for you. We uncover the hidden impact of night-time MS symptoms—from nerve pain, spasms, and restless legs to bladder urgency, burning sensations, and c...
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1:05:13
Fear of falling with MS - and what to do if you do have a fall
Worried about falling or unsure what to do if you do fall? You're not alone. Falls are a common concern for people living with multiple sclerosis.In this episode, expert physio Hilary Gunn breaks down why people with MS are more prone t...
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1:14:16
MS and relationships: balancing love and care
Relationships can be complicated, even at the best of times. When one partner is living with MS, it can bring a whole host of new challenges as well as opportunities for deeper connection.In this podcast, we explore the emotional a...
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1:32:45
Understanding and managing spasticity and spasms in MS
Spasticity and spasms are common MS symptoms that vary from person to person and can be challenging to understand and manage. In this episode, we explore how these symptoms can feel with the help of our MS community and what you ca...
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1:15:29
MS awareness week 2025 - MS Conversations
Talking about living with MS can be a tough thing to do, but open and honest conversations are vital in building understanding for the condition. In this special episode for MS Awareness Week 2025, we explore the power of MS conversations—why t...
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44:32
Living with progressive MS: therapies, treatments & daily strategies
Have you been told "nothing can be done" to treat progressive MS? Then this is the episode for you. Join Nick and Helena as they debunk this myth with the expertise of neurologist Dr. Emma Tallantyre, exploring current medical and non-medical t...
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1:02:53
Bonus Episode: Real stories on how to come to terms with a Progressive MS Diagnosis
In this bonus episode, we share some people with MS journeys of coming to terms with a progressive MS diagnosis. Adam, who lives with secondary progressive MS, is joined by his wife and carer, Sharon. Together, they reflect on how they navigate...
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1:04:51
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How do you come to terms with a progressive MS diagnosis?
Receiving the news that your MS is progressing can be a life-altering moment. In this podcast episode, we explore the emotional impact of this change and the journey towards acceptance and adjustment.Helena and Nick are joined by Dr Ange...
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1:23:59
What is advanced MS?
From challenges to special moments: advanced MS comes with a whole heap of them both. Listen now to hear three different perspectives: a person living with advanced MS, a carer and a health professional.We’re tackling advanced MS in this...
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1:09:26
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MS myths and jargon explained
Join us for a jargon busting, myth smashing podcast where we explore baffling multiple sclerosis terms and common misconceptions.Ever heard terms like PIRA, RAW, or smouldering MS that’ve left you scratching your head and asking f...
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1:19:37
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Your most asked MS questions in 2024
What questions have the MS community been asking in 2024? We took to social media and analysed our helpline enquiries to find out.Dr Claire Winchester and Corinne from our helpline team take us through the topics and explore the availabl...
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48:17
Travelling with MS: we talk public transport challenges and solutions
Is public transport derailing your life? We caught up with Meg Barnett (Transport For All), Flora (MS Trust helpline), Richard Sprenger and Antoinette Mohamed on public transport tips, helpful information and all the latest resources.
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1:10:34
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Bringing MS to work: conversations, challenges, and vocational rehab
Are you wondering how to stay productive while managing MS? Perhaps you are looking for ways to disclose your diagnosis without derailing your career? Then join us as we delve into the topic of MS at work.Hosts Nick and Helena expl...
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1:15:36
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Behind the wheel part 2: the MS driver's guide to driving assessments
What is a driving assessment? Does your mind conjure up memories of your driving test? Do you see a 17-year-old version of yourself panicking and sweating?Well, the second part of our podcast series on driving and multiple sclerosis cove...
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48:04
Behind the wheel part 1: the MS driver's guide to the Motability Scheme
Driving when you live with MS might make you feel like you’re stuck at a red light.You might start to ask questions. Who do I need to tell about my diagnosis? Can I still drive to see my family and friends? What adaptions do I need?<...
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46:27
Demystifying MS diets pt 2: What is a healthy MS diet?
What should you eat when you live with MS? We come across this question a lot from the MS community. It’s not surprising considering how much conflicting information there is out there.That’s why we’re demystifying MS diets in our two-pa...
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1:17:05
Demystifying MS diets pt 1: the Wahls Protocol and Overcoming MS
Have you thought about making changes to your diet to help manage your MS? Maybe you’ve experimented with a few fad diets, but never quite found what works.Well, we know the feeling. The world of nutrition can be tricky – you’re not sure...
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1:16:16
Young carers in MS – Oritsé Williams' story
JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS...
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54:01
Limbo land - what you can do while you wait for an MS diagnosis
Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis.Neurologist, Dr Emma Tallantyre, joins us to talk about th...
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50:34
MS Unfiltered: tackling taboo symptoms
Do you have feel embarrassed about your MS symptoms? Do you find some topics difficult to talk about? You’re not the only one. 85% of people we surveyed felt embarrassed by at least one of their symptoms and many of the community were hidin...
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1:16:40
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
Have you ever wondered how your hormones might affect your MS? We're joined by podcast guests Olivia Mason, a woman diagnosed with multiple sclerosis not long after giving birth, and Professor Ruth Dobson, a consultant neurologist specialis...
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1:26:59