
Breaking it down - A multiple sclerosis podcast
Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.
Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.
Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.
Listen now for helpful information on symptoms, treatments, updates and a whole lot more.
Breaking it down - A multiple sclerosis podcast
Talking advance care planning
Today we are talking about the often misunderstood topic of advance care planning. The MS Trust recently published an information book titled ‘Thinking ahead: setting out your wishes for your future care and treatment’. It’s a useful resource designed to help you to understand and share your personal values, and preferences, for your future medical care with your loved ones and your healthcare team.
The resource was produced by Ali, a member of the Information team here at the MS Trust, as well as MS Specialist Nurses and subject experts, Ellie Garlick and Sarah Roderick. In this episode we have all three along to shed some more light on the subject of advance care planning. What is an Advance care plan and why should you have one, how can you write one, when should you consider writing one and who can help with writing one?
*There are a few mentions of end of life care which some listeners may find upsetting.*
Episode notes
- MS Trust booklet; Thinking ahead: shop.mstrust.org.uk/publications/thinking-ahead-setting-out-your-wishes/
- MS Trust YouTube channel: youtube.com/mstrust
- Advance care plan resource for England and Wales: advancecareplan.org.uk/
- Anticipatory care planning toolkit for Scotland: ihub.scot/project-toolkits/anticipatory-care-planning-toolkit/anticipatory-care-planning-toolkit/
- Advance care plan resource document templates – includes examples of templates for advance care planning, advance statements and advance decisions to refuse treatment: advancecareplan.org.uk/examples-document-templates/
-My Living Will – information about living wills, advance decisions and advance statements: mylivingwill.org.uk/
-Make, register or end a lasting power of attorney in England and Wales: gov.uk/power-of-attorney
-Setting up a power of attorney in Scotland: mygov.scot/power-of-attorney
-Setting up an enduring power of attorney in Northern Ireland: nidirect.gov.uk/articles/managing-your-affairs-and-enduring-power-attorney